September 29, 2025

ONCOLog, Supporting Pediatric Cancer Programs with Registry Excellence

Test

ONCO > ONCOLog, Supporting Pediatric Cancer Programs with Registry Excellence

September is Pediatric Cancer Awareness Month—a time to honor children, families, and caregivers facing the challenges of childhood cancer. ONCO proudly supports pediatric cancer programs with our innovative registry software, OncoLog, to provide tools that turn data collection into a catalyst for change.  We know cancer data is more than a regulatory requirement—it’s the foundation for research, survivorship, and better outcomes.

 

Unique Challenges in Pediatric Cancer Registry Reporting

  • Rare disease burden: To address lower volumes but a wider variety of rare diagnoses, pediatric registrars must be experts in niche coding and definitions.
  • Pediatric-specific staging and coding: Unlike adult cancers, many pediatric malignancies rely on alternative staging systems (e.g., INRG for neuroblastoma, COG schemas) rather than AJCC alone.
  • Longitudinal data needs: Survivors of childhood cancers require extended follow-up, adding complexity to registry maintenance.
  • Interdisciplinary care documentation: Pediatric oncology care often involves cross-specialty teams (oncology, cardiology, endocrinology), complicating complete case abstraction.
  • Family-centered outcomes: Beyond tumor data, pediatric programs increasingly track psychosocial support, education, and survivorship resources.
  • Research and clinical trial reporting: Heavy participation in cooperative group studies, requiring meticulous tracking of enrollment and outcomes.

 

How ONCOLog Supports Pediatric Cancer Programs

ONCOLog was built with flexibility to meet the specialized needs of both ACOS Accredited and Non-Accredited programs so they may benefit from:

  • Configurable coding and staging tools that support pediatric-specific schemas, including 25 Pediatric Data Collection System (PDCS) fields.
  • Customizable QC edits to reflect pediatric requirements alongside state and national standards.
  • Multi-facility and long-term follow-up tracking to manage survivorship data seamlessly.
  • Research integration support, making it easier to track cooperative trial participation and outcomes.
  • Ad Hoc Reporting to allow for customizable queries across any data field in the registry.

 

This ensures pediatric registrars can focus less on system workarounds and more on supporting care teams with accurate, timely data.

Pediatric registries are not “small adult registries.” They are specialized, data-rich engines that power survivorship and discovery. With ONCOLog, pediatric programs have the support they need to meet CoC, national and local reporting requirements, overcome reporting challenges, and make every case count.